Publicaties
Publicatie SHOUT-BC studie (volgt)
Publicatie volgt in de loop van 2023.
Hier vindt u informatie over de SHOUT-BC studie op deze website.
Publicatie SHOUT-STROKE studie (volgt)
Publicatie volgt in de loop van 2023.
Hier vindt u informatie over de SHOUT-STROKE studie op deze website.
DUO-studies (publicatie volgt)
Publicatie volgt in de loop van 2023.
Publicatie SHOUT-AKD studie (volgt)
Publicatie volgt in de loop van 2023.
Hier vindt u informatie over de SHOUT-AKD studie op deze website.
For which decisions is Shared Decision Making considered appropriate? – A systematic review (jan 2023)
In half of the SDM models, authors explicitly described when SDM is appropriate. Authors considered SDM appropriate for a broad range of decisions. For some decision characteristics, authors disagreed on whether or not SDM is appropriate. Authors’ examples of when SDM is (in)appropriated came from a range of settings.
Dorinde E.M. van der Horst, Mirjam M. Garvelink, Willem Jan W. Bos, Anne M. Stiggelbout, Arwen H. Pieterse
Publicatie in januari 2023.
Supporting Shared Decision-making About Surveillance After Breast Cancer… (nov 2022)
Supporting Shared Decision-making About Surveillance After Breast Cancer With Personalized Recurrence Risk Calculations: Development of a Patient Decision Aid Using the International Patient Decision AIDS Standards Development Process in Combination With a Mixed Methods Design
Jet Wies Ankersmid; Sabine Siesling; Luc J A Strobbe; Johanna M Meulepas; Yvonne E A van Riet; Noel Engels; Janine C M Prick; Regina The; Asako Takahashi; Mirjam Velting; Cornelia F van Uden-Kraan; Constance H C Drossaert
Publicatie in november 2022
Relations between recurrence risk perceptions and fear of cancer recurrence in breast cancer survivors (jul 2022)
Relations between recurrence risk perceptions and fear of cancer recurrence in breast cancer survivors
Ankersmid, J.W., Lansink Rotgerink, F.K., Strobbe, L.J.A. et al.
Health care professionals’ perspectives on shared decision making… (jun 2022)
Health care professionals’ perspectives on shared decision making supported by personalised-risk-for-recurrences-calculations regarding surveillance after breast cancer
Ankersmid, J. W., Drossaert, C. H. C., Strobbe, L. J. A., Battjes, M. S., van Uden-Kraan, C. F., Siesling, S., & on behalf of the Santeon VBHC Breast Cancer Group (2022).
…Development and usability tests of a Chronic Kidney Disease dashboard (okt 2022)
Optimizing the use of patients’ individual outcome information – Development and usability tests of a Chronic Kidney Disease dashboard
D.E.M. van der Horst, C.F. van Uden-Kraan, E. Parent, J.A.J. Bart, G. Waverijn, J.A.M. Verberk-Jonkers, M.A. van den Dorpel, A.H. Pieterse, W.J.W. Bos
Publicatie in oktober 2022
Naar publicatie
Needs and preferences of breast cancer survivors regarding… (feb 2022)
Needs and preferences of breast cancer survivors regarding outcome-based shared decision-making about personalised post-treatment surveillance
Jet W. Ankersmid, Constance H. C. Drossaert, Yvonne E. A. van Riet, Luc J. A. Strobbe & Sabine Siesling on behalf of the Santeon VBHC Breast Cancer Group
Journal of Cancer Survivorship (2022)
Naar publicatie
Follow-up after breast cancer… (2021)
Follow-up after breast cancer: Variations, best practices, and opportunities for improvement according to health care professionals
W. Ankersmid, Jolanda C. van Hoeve, Luc J. A. Strobbe, Yvonne E. A. van Riet, Cornelia F. van Uden-Kraan, Sabine Siesling, Constance H. C. Drossaert, the Santeon VBHC Breast Cancer Group
Follow-up after breast cancer can be divided into surveillance and aftercare. It remains unclear how follow-up can ideally be organised from the perspective of health care professionals (HCPs). The aim of this study was to gain insight in the organisation of follow-up in seven Dutch teaching hospitals and to identify best practices and opportunities for improvement of breast cancer (all stages) follow-up as proposed by HCPs.
Naar publicatie
Naar artikel op website IKNL.
Experiences with information provision and preferences for decision making of…
Experiences with information provision and preferences for decision making of patients with acute stroke (2021)
J.C.M. Prick, V.J. Zonjee, S.M. van Schaik, R. Dahmen, M.M. Garvelink, P.J.A.M. Brouwers, R. Saxena, S.H.J. Keus, I.A. Deijle, C.F. van Uden-Kraan, P.J. van der Wees and R.M. Van den Berg-Vos
The aim of this study was to gain insight into experiences of patients with acute stroke regarding information provision and their preferred involvement in decision-making processes during the initial period of hospitalisation.
Naar publicatie.
Shared Decision-Making in Advanced Kidney Disease…
Shared Decision-Making in Advanced Kidney Disease: A Scoping Review Protocol (2020)
Noel Engels, Gretchen de Graav, Paul van der Nat, Marinus van den Dorpel, Willem Jan Bos, Anne M Stiggelbout
Patients with advanced kidney disease (AKD) have to make difficult treatment modality decisions as their disease progresses towards end-stage kidney disease. International guidelines in nephrology suggest shared decision-making (SDM) to help patients make timely treatment modality decisions that align with their values and preferences. However, systematic reviews or scoping reviews on these SDM interventions and on their reported use or outcomes are lacking. This limits the adoption of SDM in clinical practice and hampers further research and development on the subject. Our aim is to provide a comprehensive and up-to-date overview of these SDM interventions by means of a scoping review of the literature. Scoping reviews can provide a broad overview of a topic, identify gaps in the research knowledge base and report on the types of evidence that address and inform practices. This paper presents our study protocol.
Presentaties
Verslag voortgangsbijeenkomst 8 oktober 2021
Op vrijdag 8 oktober 2021 zijn diverse betrokkenen en geïnteresseerden bijgepraat over de laatste stand van zaken binnen het Experiment Uitkomstindicatoren. Hier vindt u het verslag.
Abstracts ARPH conference january 28-29, 2021
Op 28 en 29 januari 2021 is op de 10e ARPH (Association of Researchers in Psychology and Health) conference vanuit het Experiment Uitkomstindicatoren een presentatie gegeven over het behoefte-onderzoek bij borstkanker. Ook is een demo van de ontwikkelde Borstkanker nacontrole keuzehulp getoond.
Verslag voortgangsbijeenkomst 20 november 2020
Op vrijdag 20 november 2020 zijn diverse betrokkenen en geïnteresseerden bijgepraat over de laatste stand van zaken binnen het Experiment Uitkomstindicatoren. Hier vindt u het verslag.
Abstract book of the 10th edition -2020 of the Supporting Health…
Abstract book of the 10th edition -2020 of the Supporting Health By Technology-series, from the Centre for eHealth & Wellbeing Research, University of Twente, The Netherlands.
The use of outcome data for shared decision…
The use of outcome data for shared decision making in breast cancer follow-up – the SHOUT-BC study protocol
Supporting Health by Technology International Conference 11-6-2020
Jet Ankersmid, Constance Drossaert, Luc Strobbe, Cornelia van Uden – Kraan and Sabine Siesling
Naar presentatie
Abstract 1 ICHOM
Presentaties voortgangsbijeenkomst 24 januari 2020
Op 24 januari 2020 zijn het ministerie van VWS, de begeleidingscommissie van ZonMw en andere betrokkenen en geïnteresseerden bijgepraat over de laatste stand van zaken binnen het Experiment. Hier vindt u de presentaties.